I… am a Cancer Survivor

This entry is part 1 of 13 in the series Cancer Survivor

This series was originally posted on Seems Like God beginning July 29, 2009. Since this is not a “religious” story, and some readers might shy away from a “religious” site, I’ve moved it to the Hub. This also gives me an additional opportunity to edit the series as I prepare it for possible print publication.  If you find it in any way encouraging or comforting, I hope that you will share it with others. David

I … am a cancer survivor.

Even when I write it down, I have to pause to let the idea sink in. In the spectrum of life-changing events, it ranks pretty high.

When it all began, I was asked how it was affecting me. And I had intended to write about the “adventure” as it unfolded. But I found I couldn’t do it. I think I needed to get some distance, some perspective, before I could tackle it. Nothing I wrote or said seemed to capture the core of what I was experiencing. Even now, with some treatment issues to be determined, and of course ongoing follow-up to happen, I wonder if I’m being premature in penning these notes.

Somehow it feels like the right time.

There are, of course, many stories of survival both online and elsewhere. Cancer, at least in some of its forms, is yielding to determined medical research. Even so, the word still strikes fear into those who hear it. If this small story helps even one person cope just a little more easily with this or any other challenge in their life, it will have been worth it.

  • Share/Bookmark

Like a Little Michelin Man

This entry is part 2 of 13 in the series Cancer Survivor

“When I first met Mr. Keating, he looked like a little Michelin Man.” That was the comment one of my doctors made to the resident accompanying him to a recent appointment with me.

And that’s how this all started you see. Let me explain.

Shortly before Christmas 2008 I noticed that I seemed to be gaining weight. At first, I didn’t think much of it, what with Christmas goodies laying around to tempt me off my normal eating patterns and all. However, the gain continued past Christmas and became rather pronounced; obviously not the result of over-indulging in Christmas cookies.

So in early January I decided I’d best get a professional opinion. Not having a family doctor, I stopped into the local clinic. The gentleman there agreed that something was definitely amiss. Since none of the standard poking and prodding that doctors routinely do suggested an obvious culprit, the next step was to order some tests. And as this was a Saturday, the tests would have to be done the following week.

Dutifully, I showed up at the local medical lab on Tuesday, January 19th, 2009, where several vials of blood were drawn. This was followed by a chest x-ray. Off home I went.

Unfortunately (or fortunately I suppose), on arriving home I found a message on my answering machine asking me to call the clinic, which I did. The x-ray tech had flagged my pics and the receptionist wanted me to come back in. Right away. “Don’t take a number, Mr. Keating, just let me know when you get here.”

That didn’t sound good. The first ominous rumblings of what was to come rolled through my head.

When I got back to the clinic, the general practitioner on duty (a very friendly, yet professional lady) informed me that the x-ray showed fluid on my lungs. Well, since there seemed to be fluid everywhere else, why not, I quipped ruefully. Next question of course – what do we do about it? Can you give me a pill?

The doctor did not think a pill was the answer. In fact, she thought it best that I be seen in the emergency room of the hospital across the street; and, to be sure I didn’t get put at the bottom of the priority list, she called the ER and spoke to the doctor on duty there, who agreed to see me as soon as possible after I got there.

There was that ominous rumbling again.

So off to the ER went I. After another bit of poking and prodding, the ER doctor let me know his initial conclusions – my blood pressure was through the roof. This, he reasoned, was likely the reason for the fluid retention. He’d keep me in hospital overnight, give me some medication and try to bring the BP down. “See?” thought I. A pill.

So now I had to call my seventeen year old daughter and tell her not to worry. Like that would work – “Hi hon. Dad’s gotta stay in hospital overnight, no big deal. Happens all the time. Look after Gramma. Love ya.” Sheesh. Then I had to let my boss know I wouldn’t be logging on for work in the morning. Just using up a sick day, boss. No biggie. And then I had to get in touch with my cousin to pick up my truck and take it to her place for the night. No overnight parking in the hospital lot of course. Last thing I wanted was to have to go to the impound yard and bail out my vehicle when I was released the next day.

And after all that was said and done, good night Mr. Keating, you have a good sleep, okay? Indeed.

As it turned out of course, we now know that the initial diagnosis, as logical as it may have been, was not the root of all my evils.

Staying in the hospital that night, however, very likely saved my life.

  • Share/Bookmark

A Bucket of Cold Water

This entry is part 3 of 13 in the series Cancer Survivor

The next morning, the nurse gave me a second dose of the blood pressure medication and put a patch, nitroglycerin I think, on my arm.

All was well for about ten minutes. Suddenly, however, I felt as though someone had dumped a bucket of cold water on me.

I called the nurse.

She looked at my face. And then…

Almost instantly, it seemed, the space around my bed was full of nurses; the ER doctor came into the room on the double. All the meds were pulled and I found myself looking up into a circle of concerned faces. I’m sure my own expression was considerably more bemused, since I was mostly thinking what a well-coordinated team they were.

It was the first time, but certainly not the last, that I thought the Fates might have decided that the time had come to cut the thread of my life and send me on a new journey. My main concern was that I hadn’t been able to tell my sons and daughter goodbye. This was an even greater concern in the case of my sons, whose mother had been killed in a car accident when they were very young. Just didn’t seem fair somehow.

However, I didn’t see any light to walk into, so I hung around.  The doctor had me wheeled into the cardiac care area of the ER and ordered an immediate echocardiogram. Which revealed fluid around my heart as well. No big surprise I guess, but now we knew why my blood pressure was so high. Poor old heart was beating underwater.

Given the apparent extensive nature of my problem, the decision was made to transfer me to Kingston General Hospital, which has a dedicated cardiac wing. It’s also a teaching hospital, associated with Queen’s University.

Fire up the ambulance folks, we’re goin’ for a ride.

I was still concerned about the lack of opportunity to contact my family. Since the doctor wasn’t exactly open to the idea of letting the ambulance idle while I made phone calls, I contacted my cousin, who was, quite coincidentally, already in the hospital that day. I updated her, and asked her to let my daughter know what was going on. Not being the dramatic type, I resisted the temptation to say “And if I don’t see you again,  so long, and thanks for all the fish.”

Just the same, I think I may have scared her just a little. Okay, more than a little; then again, I was definitely more than a little on the nervous side myself.

In any case, once the ambulance was ready, and the hospital nurse who was also to accompany was prepared, off we went. Note to those who’ve never been in one: ambulances do not offer as smooth a ride as I would have thought, given their generally fragile cargoes.

During the trip, which took about an hour, the paramedic, the ER nurse, and I chatted. There were frequent reminders to let them know if I felt strange. Strange??? Compared to …. ? But I appreciated the solicitousness just the same.

Once we arrived inKingston, paperwork was exchanged, notes were compared, the paramedics and the nurse handed me off, and I found myself behind a glass wall, watching the folks at the nurse’s station watch me.

Welcome to the fishbowl, Mr. Keating.

  • Share/Bookmark

Deflating the Michelin Man

This entry is part 4 of 13 in the series Cancer Survivor

At this point, about twenty four hours had passed since the chest x-ray.  Been quite a ride.

It wasn’t long before a cardiology resident, along with a couple of additional people who were briefly introduced, appeared at my bedside.

I should take a moment here and explain a little about how the resident system works at the hospital. At least to the extent I understand it.

New doctors spend five years in “residency”, essentially working under the direction of a senior physician, while they hone their skills. As they advance through the program they gain greater autonomy. As part of the process, those who are more advanced in their residency have less experienced doctors and other specialists as part of their team. In this way, everyone gains from the experience of the others and a certain synergy comes into play that makes the environment rather dynamic.

At least, that was my experience. I should also note that I found throughout this entire experience that the health care system performed beyond my expectations. But more about that as we go along.

Dr. Thakrar, the lead resident who would be my primary contact throughout this phase of my illness, wanted to know how I was feeling. He asked a number of questions about symptoms. Had I had any shortness of breath? Fatigue? Numbness?

Didn’t think so; not really; and nope. Just this funny taste in my mouth. And of course, a minor issue with gaining twenty some pounds in two weeks.

Doc didn’t question my comments on lack of symptoms, although he later confided that his own observations were somewhat different. Guess I wasn’t all that clued in when it came to my own functionality. Funny how things can sneak up on you. Even life-threatening things.

Instead, he explained what was going to happen next. With my permission of course. But heck, what was I gonna say, “no”? Not likely.

They felt that the most immediate need was to relieve the pressure on my heart. After all, I’d already just survived a rather alarming cardiac episode, and they would prefer that I not have a repeat incident. I was all for that as well.

So Dr. Thakrar would set up a procedure, the name of which escapes me at the moment, that would see him bring in a nurse to assist and an ultrasound tech to guide him while he slipped a drain in through my chest and up alongside my ticker. No sweat, done right here in the bed Mr. Keating. A little local anesthetic, you won’t feel a thing. See you in a couple hours, as soon as we’re all set to go.

Then they left me alone for a bit. During which time my daughter Meaghan, and her boyfriend Alan, arrived.

After lots of hugs and a few tears, we looked at each other and said, as I recall, the equivalent of “huh.”

We’ve never been a family to panic in the face of crisis, and we’ve had a few over the years. My sons’ mother, as I mentioned, died when they were very young, in a car accident. My dad died at home while we held his hand. My daughter’s mother up and left one afternoon (the reasons for which were many, varied, not entirely unexpected, and at least equally my fault). Then two years previously, my daughter had shown up on my doorstep at 10:30 at night when her stepfather had thrown her out (the reasons for which I shall not stoop to include here – save to say that some stepfather stereotypes exist for a reason). And a year ago, we’d spent the day after Christmas in hospital while my daughter had an emergency appendectomy.

In each situation, there seemed little point in bemoaning fate, circumstance, or the vagaries of the world. Better to simply say “huh”, and deal with it.

Huh.

  • Share/Bookmark

Medical Dummy

This entry is part 5 of 13 in the series Cancer Survivor

This is, sort of, a continuation of Deflating the Michelin Man. At least, it deals with events from the same day.

Shortly after my daughter Meaghan,  and her boyfriend Alan showed up, and while we were waiting for the whole “drain” thing to happen, a different doctor dropped in. This fellow was an instructor at the university and he wondered if I’d mind if he brought by his first year medical class to have a boo at me? Hey, I’m a big supporter of the health care system in Canada. Anything I could do to help imbue future doctors with wisdom and compassion I was up for. Bring ‘em on.

So a few minutes later I found myself surrounded by a dozen or so fresh-faced young men and women who bore expressions ranging from boredom (heck, this guy just needs to go on a diet) to intense fascination (oh, I hope he’s got something exotic). My daughter didn’t look any too comfortable with all the attention I was getting so I asked her if she could maybe go see if she could find me a newspaper. “Take your time honey, I’m in good hands.”

The doctor/instructor began by asking his eager charges a number of questions about what they could tell from a visual observation of my fine, fit form. Well first of all, observed one, I didn’t look all that fine or fit. No one offered the “Michelin Man” comparison but I think the fact that I was in one of the fishbowl rooms was a pretty good clue that obesity wasn’t the prime motivator here. To confirm, though, the student in the hot seat did ask about my weight prior to my admission to hospital. “Trying to lose a few” was my reply. Which was true. I had been about twenty five pounds overweight before I gained the additional twenty in the previous two weeks.

“So,” says the instructor, “obesity was not a major factor. Lets look more closely at the patient’s condition.” This was when I got to play medical dummy, a role I’m apparently quite good at. One by one, each student got to thump my back, my chest, and take a gander at my, currently oversized, gams. By the time they were done, they all knew how to determine just how high the fluid in a patient’s lungs had risen (the thumping the back process – kinda like tapping a drum until you hit the hollow sound), and therefore how much breathing capacity said patient retained. All agreed that I was running on significantly less than half capacity.

Say what now? Hearing such things discussed dispassionately by a group of twenty-somethings who were, I was quite certain, still spending weekends checking out the local nightclub scene,  somehow gave it a whole new flavour.

Being in the cardiac ward was a bit of a clue as to the direction of investigation of course. Still, the instructor asked for suggestions from the floor – “What is up with Mr. Keating?”  The girl who offered cardiac tamponade got the gold star; that being the proper term for “so much fluid around his heart that it’s workin’ like it was free divin’ in the Marianas Trench.”

After allowing the gang to practice their bedside manner – some were quite good; A+ for compassion folks – by spending a few minutes asking me whatever they wanted to, the instructor gathered his charges and moved on, presumably to some other, equally “interesting”, patient. And while my naturally ironic view of the world found the whole thing humourous, I was also surprisingly reassured by the knowledge that I was in a place where whole classes of doctors and future doctors wandered around just looking for symptoms and side effects of interesting and challenging conditions. If any place had a shot at resolving whatever was causing my issue, this was surely it.

It wasn’t long after that Dr. Thakrar reappeared, trailing different people and carts full of equipment. Some of which looked rather sharp. I suddenly remembered why I didn’t watch horror movies. Too many sharp things that ended up in too many people.

Doc was, however, reassuring in both word and deed, explaining to me what each person in the room was responsible for, as well as how long they’d been doing what they were going to do. The nurse assisting, as it turned out, would be assisting in this particular procedure for the first time. Was I okay with that? Sure. Heck, everyone has to have a first time, don’t they? Might as well be with me.

Sounded like a Billy Joel tune.

  • Share/Bookmark

Stick a Pin In It

This entry is part 6 of 13 in the series Cancer Survivor

As the doc and his team prepped, I had a few minutes to reflect on the emotional roller coaster I’d been riding. After all, barely twenty four hours had passed since this whole adventure started. So far, I’d found out that I was not only swelling up on the outside, I was full of fluid on the inside as well; I had apparently almost died once; had a bouncy ride in an ambulance; and now, was about to have a “drain” – one of those small pointy objects – nuzzled up alongside my heart.

I’d gone from being pretty certain that I was going to need something as simple as high blood pressure pills for the rest of my life, to wondering if I’d have an opportunity to say goodbye to my family, to cautious optimism that whatever was wrong with me might possibly be treatable. It’d been quite a ride.

Little did I realize it hadn’t even begun.

This procedure wouldn’t exactly “deflate” the Michelin Man. It was more a matter of giving my heart room to do its thing. With my ticker back to full capacity, it was hoped, my body would naturally start to deal with everything else.

While the ultrasound guy prepped his equipment, the nurse helped Dr. Thakrar gown up and then laid out the shiny metal instruments according to his directions. Perhaps oddly, its the creation of a sterile “theatre” around my bed that I remember most clearly. I’ve had a couple of operations in my life – a hernia, my appendix, that sort of thing. But one tends to be sedated when those processes take place. This was different. The care that went into ensuring that none of the instruments touched any part of the room or the bed I was in; the procedure for sterilizing the ultrasound wand; even the way the nurse assisted with the doc’s gown, both impressed me and brought home just what was happening.

On the other hand, everyone seemed pretty relaxed. Including me I think. After all, no point in getting all in a tizzy was there? I was in a very good hospital, with obviously competent people, who were doing exactly what they’d spent most of their lives training for. We might just as well enjoy a little comeraderie on this journey that fate had thrown us together on. So we joked a bit about sharp objects, and how steady Dr. Thakrar’s hand was, and how still I was going to be able to stay while he was sliding that needle in, using the shadow box images of the ultrasound as his only guide.

When the procedure began, however, all levity stopped. Nothing could have been more professional. I have never stopped being amazed, then or in any of the procedures that were to follow, at how such a disparate group of people can meld themselves into a coherent unit to accomplish the task at hand. The nurse had whatever the doctor needed seemingly instantly; a few words exchanged between doctor and ultrasound tech were enough to adjust the view of my intermal machinery so that the needle ended up where it was supposed to be, and in, it seemed to me, less time than expected.

Drain in place, a hose and container were attached and the tap turned on. It took no more than an hour to complete the entire procedure. “Now, Mr. Keating, lets see how you respond, and lets see if we can find out what caused all this nastiness in the first place, shall we?”

Sounded like a plan.

  • Share/Bookmark

There's a What Where Now?

This entry is part 7 of 13 in the series Cancer Survivor

After that first, rather dramatic, day was over, I was able to get in touch with my sons, both of whom were living in Alberta. My oldest son’s wife was expecting my fourth grandchild in July, just six months away. I had planned to take my vacation around the due date and be there. Suddenly, I was telling them they might not be able to count on me making it.

Still, there was no need to panic anyone. I was in a good hospital, with a great team of doctors, residents, nurses, and students. In truth, I didn’t feel bad, and with fluid drained from around my heart, it seemed a little premature to call the pine box people. So, while I made sure to talk to everyone, and to tell my closest friend that I’d left messages on my computer “just in case”, I didn’t start saying kind things about the Grim Reaper just yet. (although I loved him in Bill and Ted’s Bogus Journey).

 The doctors had a plan to find the cause of my curious condition. As they weren’t prepared to discharge me until they did, I spent a total of two weeks in the Cardiology unit at Kingston General. Once they were reasonably confident that I wasn’t going to suddenly check out in the metaphorical sense either, they moved me to a “step down” unit – which is basically a ward with four beds, its own nurse and restricted access. I remained hooked up to a heart monitor during this time, so going anywhere, including the bathroom, meant trailing a mess of wires across the room. Still, if something did happen to my ticker, it was good to know that someone would be alerted right away. At least they could roll me out of the hall so no one tripped over me.

A CT scan performed a couple days after my admission showed fluid coming back around my heart. So it was decided to redo the drain, this time leaving it in place for an extended period. As I was not, of course, the only patient in the step down ward when this was done, the other patients and their visitors could hear what was taking place. Their view was obscured by the curtain which was drawn around the bed. Only thing was, as the nurse had to go in and out frequently, that curtain was often parted.  I vividly recall the look on the face of a young girl visiting her grandfather in the bed across from mine. Her eyes were wide open and seemingly fixed on the split in the curtain, as she was staring in astonishment each time it opened. I smiled encouragingly back at her and winked.

I mentioned (in Stick a Pin in it) how the drain is inserted. One of the doctors working with Dr. Thakrar would be doing the insertion this time, with Dr. Thakrar assisting on the ultrasound. It would be his first tme. It took considerably longer, something for which he felt obliged to apologize on several occasions. From my perspective, the procedure, performed under local anesthetic, was not painful nor even uncomfortable. If poking around in my chest helped this intense young man perfect his technique and maybe save someone else’s life someday, it was a win all around.

Once this second drain was in place, my heart remained clear. While the doctors had hoped that my body would begin to naturally clear the fluid in my lungs (which was, after all, what had taken me to hospital in the first place), that didn’t seem to be happening. So it was decided to drain them as well. Or, more accurately, to drain the space around them since the fluid was actually building up outside the lungs in the membrane that they hang in. It’s called a pleural effusion.

I didn’t get to see the handiwork for this procedure as its done from the back. “Please sit on the side of the bed Mr. Keating, and kindly don’t move around too much. That’s right, just lay your head on the tray, here’s a pillow. This won’t hurt a bit.” Uh huh. Actually, there really wasn’t any pain, and, while it was a longer process, it went smoothly, with a litre of fluid being whisked away for analysis. Afterward, the woman in bed beside me asked if she could pray for me. Apparently it sounded much worse for those who couldn’t see what was going on. I suggested, since she was also in a high-care unit, that we pray for each other. She thought that was a good idea.

While these procedures were going on to alleviate my symptoms (I still looked like a Michelin Man) there were also tests to determine what was causing the problem in the first place. My heart seemed in good shape. In fact, if it hadn’t been in such good condition, I would probably not have lasted long enough for anyone to do anything. Too bad, please make a donation in lieu of flowers.

So I was echoed, and ultrasounded, and CT’d from head to toe and everywhere in between. And I mean everywhere. My blood was drawn and tested. My personal history was explored -

 - “Have you been out of the country lately?” No.
     – “Do you take any recreational pharmaceuticals?” No.
        – “Have you enjoyed the company of…” No, and sheesh! 
           – And of course the samples from around my heart and lungs were cultured and pathologized (is that a word?) All came back negative. Halleluiah! I was healthy as a horse. A bloated horse, but you get the idea.

Except …

“Hmmm. Mr. Keating, there seems to be a mass of some kind in your chest. Shouldn’t be there. Fairly big sucker too actually. Pressing on the heart you see. Which is irritating your heart. Which is responding by creating all this fluid.

“The good news is that we’re pretty confident that this is the source of your problem. The bad news is that, well… there’s this really big mass in your chest.”

Oh.

  • Share/Bookmark

Anterior Mediastinal Mass – Huh?

This entry is part 8 of 13 in the series Cancer Survivor

Things that grow in people’s chests are called “anterior mediastinal masses”; which, I suppose, is better than “big hunk of nasty”, but personally I don’t think it’s nearly as colorful.

In any case, now we knew what was causing all the fuss, at least in general terms. But the doctors needed to know what, specifically, this “mass” was in order to decide how to go about treating it. One thing I knew for sure – it needed to go.

Before I did.

The way doctors find out exactly what shadows on CT scans really are is to do a biopsy. Which, as you may already know, is a fancy way of saying that they take a piece of it out and pathologize it (I know, that’s still not a word). In my case, there were two choices as to how to do this.  The first was to slice an opening in my chest, reach in, cut off a little helping, and sew me up again.

Which was how I met Dr. Petsikas. Actually, I met his resident team first, which was led by a very intense young lady. Standing by my bed, she seemed ready to pick up a knife and do the job then and there. She also seemed a little disappointed by the possibility that she might not have the opportunity.

Dr. Petsikas came in the next day, swept past my bed on the way to the computer terminal at the nurse’s station, and asked if I wanted to see the beastie in my belly (well, okay, not literally my “belly” – I just think it has a nicer ring to it, don’t you?). Once I recovered my bearings, I said “sure.”  I have since come to believe that all surgeons have this no nonsense, full-speed-ahead approach. Which I think is a good thing. One does not want the person who has you laid open like a filleted mackerel to be hesitant about what to do next or how you’re supposed to go back together.

I confess that the images Dr. Petsikas showed me didn’t really make a lot of sense to me. I could see the image of the “beastie” well enough, I just didn’t have any context for it. Doc’s comment that it was, probably, about the size of a baseball, had a lot more impact. Kinda like being hit in the chest with one, if you want to know the truth.

How the devil did something that big get there without my noticing?

In the end, the decision was made to go with a “needle biopsy.” The up-side was that it was a less invasive procedure. The down-side was that, once again, I’d be awake during the process. Not to mention being in a CT machine the entire time. And expected to hold still.

The doctor who performed the biopsy was a very pleasant fellow whose name, I’m sorry to say, I cannot remember. He made very sure that he briefed me on exactly what would happen, what my options were, and what he needed to get out of the the whole thing for the pathologist. Essentially, a rather large hollow needle would be inserted just above my breast bone, slid in until it rested on the beastie. Then a little nibbler would be inserted through the needle and pushed up against the beastie; after which the doctor would chew little pieces of it off and put them in a jar.

Hopefully, the beastie would not decide to escape on its own, ala Sigourney Weaver and Alien, when we bit it.

The whole process, I’m happy to say, went off without a hitch. Doc had said the most nibbles he’d ever gotten during the procedure was twenty four, and at worst, he’d be happy if we got two. We went for the record and took thirty. First record I ever broke. I did try to get him to just keep nibbling until it was all gone but he didn’t think that was really an option.

Back to waiting.

  • Share/Bookmark

Final Answer Regis

This entry is part 9 of 13 in the series Cancer Survivor

There were two main possibilities for the nature of the beast – lymphoma, or thymoma. I had also suggested the aforementioned Alien larva.  After all, Sigourney had carried one around for, like, three sequels before it showed up. The doctors, however, seemed to think it was a pretty distant third option.

Opinion was divided on which of the two was “better” (read “less likely to kill me in the near future”). Lymphoma is much more common and had the benefit, if that’s the right word, of being more extensively researched and understood, with a wider range of treatment options.

Thymoma, on the other hand, is relatively rare. Which means less is known about it. Since the indications seemed to be leaning in this direction, Dr. Thakrar printed off a thick sheaf of information on thymoma for me. Turned out there were a couple of types. A “plain, old” thymoma was essentially a matter of  the thymus gland, which normally goes dormant when we hit our teen years, forgetting to “turn itself off.” It just keeps growing. And growing. Until four or five decades later it almost kills you. Since it tends not to metastasize (spread), however, treatment is very focused and success rates are high. Hence the potentially “better” diagnosis.

If this was a “thymic carcinoma“, however … well, best not to plan any Christmas parties. Or St. Patrick’s Day for that matter. Valentine’s Day, a couple of weeks away, was in question as well.

Hunh.

While I waited for the official diagnosis, things became pretty routine. My cardiology team concluded I was stable enough to have the drain taken out and to be disconnected from the monitoring equipment. Which meant that I could be transferred to a regular bed and had the run of the hospital.  Exciting stuff let me tell ya.

Even more exciting was the news that I could go home.  I’d been in hospital almost two weeks at this point and while the care had been exceptional, as Dorothy said there’s no place like home.

It wasn’t until the very hour that I was to leave – while, in fact, I waited for Meaghan and Alan to pick me up, that I received the final conclusion and could name the beastie in my chest – Thymoma. The plain, old kind.

I’m not sure that my reaction was quite what the oncologist who delivered the news, Dr. Gregg, was expecting.

I smiled.

And then I went home.

But not for long.

  • Share/Bookmark

Alien Bustin’ Out

This entry is part 10 of 13 in the series Cancer Survivor

As with most conditions of this type, doctors have three major weapons in their arsenal – poison it with chemo (not the exact terminology), fry it with radiation (again I take liberties), and slice and dice (technically called redaction, or, for us laymen, “surgery”).

Not long after I went home, I got a call setting up a consultation appointment to determine exactly which combination of the three my treatment plan would be.

Within a couple of weeks Meaghan and I were sitting in an examination room in the Cancer Centre of Southeastern Ontario at Kingston General Hospital. We were there to meet Dr. Falkson, the radiation oncologist. He, along with Dr. Gregg, the medical oncologist (chemotherapy), and Dr. Petsikas, thoracic surgeon, were jointly consulting to determine who got to do what to me when.

Apparently they’d tossed a coin and Dr. Petsikas had won – cutting would come first. The other two would have to fight over what, if anything, was left.  Now, Dr. Falkson didn’t put it exactly that way, of course. He said a lot of stuff about how they’d looked very closely at my scans and that it seemed that perhaps the beast hadn’t yet, quite, sunk its hooks into any other important stuff in my guts. Like my heart or my lungs. That being the case, they thought it prudent to go to surgery first. Normally, as I’d discovered in my research, this was an option primarily used for earlier stage tumors.

However, I thought that it sounded like a fine idea. I was of the opinion that I’d rather have someone on the outside deciding when to cut the beast out than to wake up one morning with Sigourney Weaver tut-tutting over the exploded mess that the thing had made of my chest by deciding to vacate on its own (okay, that wouldn’t literally happen. But the alternative, not waking up one morning, was no more appealing.)

After a brief discussion with Meaghan, we gave this plan the thumbs up and a few days later found ourselves meeting with Dr. Petsikas. He outlined what would happen next, set up some tests, including an MRI, and told me he’d see me in hospital when I settled in, a couple of weeks hence.

That couple of weeks passed quickly. The only test I hadn’t undergone before, the MRI, wasn’t as bad as I’d expected. That is, as long as you don’t mind being stuffed into a machine with an opening the size of a ventilator shaft for 40 to 60 minutes while a motorcycle gang revs its engine just outside your head.

On the up side, a technician,  selected, I’m convinced, for the skill of being able to sound like an angel, whispered encouragingly into the headset I was wearing so I never felt alone.

In other words, piece of cake.

As upbeat as I tried to be, I had no illusions as to the seriousness of my situation. Nor do I want to minimize the harrowing and traumatic experiences of others. I met many fine and wonderful people in the course of this. Some have not been as fortunate as I. They are often in my thoughts.

In the world of cancer, things are measured in “stages.” The actual scale differs from one type of cancer to another. In my case, I was a Stage 4A on a scale that had no Stage 5 and only used one more letter of the alphabet.

I spent the time before returning to hospital making sure that, as the cliche goes, my affairs were in order. It’s a very odd feeling, disconnecting oneself from life. One of the oncology residents who visited me during my first hospital stay had suggested that I “prepare for the fight of my life.” I took him at his word.

  • Meaghan briefed on bills to pay, location of important papers, people who could help as needed - check.
  • Insurance papers for work properly completed and processed – check.
  • Friends and relatives contacted and thanked – check.
  • Roses smelled, walks along water taken, sunsets savoured, sunrises ditto and more so – check
  • Beneficiaries properly verified and updated – check.
  • Family – sons, daughter, daughter-in-law, grandkids, mother – talked to, cried with, reassured (a delicate balance) – check, and check again.

I went back to hospital five weeks after having left. I met the anesthesiologist, some of the surgical team, and a constantly changing roster of floor nurses and assistants whose one common quality seemed to be the desire to make as many people as comfortable as possible in the midst of difficult and terrifying times.

And then, early one morning I said hello to Dr. Petsikas, cracked a lame joke with some nurses whose faces were hidden behind masks, and slid from my hospital bed onto a shiny steel table in a room that looked like it should be on a television show. The anesthesiologist apologized for having to stab me twice with one of his needles (I do not have very cooperative veins).  I told him it was not a problem, I was expecting to have a somewhat bigger hole in me shortly.

…. and then I went to sleep for a while.

  • Share/Bookmark